My Baby Turned 3~ Journal 2

So yesterday my baby turned 3. It was a day to celebrate. The last year was really tough on us. We took him to the Dr last April because he had a little rash. After having him at a pediatrician that was never in the office, and seeing the other Dr’s in his office all the time, we switched Dr’s. His new Dr. noticed that he had birth marks, like 30 of them. He referred us to genetics in Columbia at the children’s hospital. And from there we saw a lot of Dr's. We found out that he has a suspected diagnosis of Neurofibromatosis, he has craniosynistosis, and he had brain surgery for a chiari malformation in March. He has microcephaly, a Chromosome 16 micro duplication, and last week we were told they believe he now has Tuberous Sclerosis. But if you look at that little guy, you would never know there was anything wrong with him. That boy is so funny. He has the best personality. He is happy and watching him makes me enjoy my life more. When I was pregnant with him, I didn’t want another baby. I already had my son and I did not need another one. I had a threatened miscarriage with Tristan. Then, when I thought I might lose him, it was a different ball game. I did want him and I was heartbroken at the thought of not having another baby. (That didn’t stop me from getting my tubes tied.) hehe. But now I look at him, and even though he is not developing at the right speed, he is still so special. He has no idea what the letters of the alphabet are, or which color is which even though most 3 year olds do. But he knows what love is and joy. And he knows what trouble is too. Sometimes he gives me a run for my money, but he is just a sweet little thing and I pray blessing and healing on him every single day. I hope everyone else doesn’t see him as a disability, but as the silly little man that he is.


Word Count 356
6.26.13